\u201eMoment\u00e1lne viem le\u017ea\u0165, sedie\u0165 v\u00a0ort\u00e9ze, alebo sa nech\u00e1vam nosi\u0165 na ruk\u00e1ch, alebo ma vozia v ko\u010diari. Na to, aby som mohla a\u00a0vedela sama aspo\u0148 sedie\u0165, \u017eia\u013e neexistuje \u017eiaden liek. Pom\u00e1haj\u00fa mi len rehabilit\u00e1cie, r\u00f4zne cvi\u010denia a\u00a0mas\u00e1\u017ee, aby moje svaly a\u00a0\u0161\u013eachy celkom nestrnuli. Moje rehabilit\u00e1cie s\u00fa nevyhnutn\u00e9 aj z\u00a0d\u00f4vodu v\u00fdraznej skoli\u00f3zy chrbtice, ktor\u00fa mus\u00edme cvikmi stabilizova\u0165, preto\u017ee mi hroz\u00ed oper\u00e1cia.\u201c<\/p>\n
\u201eV roku 2016 sa narodila moja zdrav\u00e1 sestra Lenka a\u00a0v\u00a0J\u00fani 2019 k\u00a0n\u00e1m pribudla \u010fal\u0161ia sestri\u010dka Lujza. Lujzinka sa m\u00e1 tro\u0161ku lep\u0161ie ako ja, u\u017e vie papa\u0165 a\u00a0kri\u010da\u0165, no onedlho bude ma\u0165 3 roky, e\u0161te nevie sama chodi\u0165, ani rozpr\u00e1va\u0165 a je na svoj vek ve\u013emi malink\u00e1. Aj ke\u010f je tro\u0161ku silnej\u0161ia ako ja, mus\u00ed tie\u017e ve\u013ea cvi\u010di\u0165, aby sa nesk\u00f4r postavila na nohy.\u201c<\/p>\n
Viackr\u00e1t sme absolvovali rehabilit\u00e1cie v\u00a0ADELI centre v\u00a0Pie\u0161\u0165anoch, napredujeme a\u00a0to hlavne mal\u00e1 Lujza. Spo\u010diatku nevedela sedie\u0165, teraz sed\u00ed, \u0161tvorno\u017ekuje, postav\u00ed sa a\u00a0aj ke\u010f plynule nechod\u00ed, za pomoci dok\u00e1\u017ee urobi\u0165 zop\u00e1r kr\u00f4\u010dkov. Rehabilit\u00e1cie n\u00e1m d\u00e1vaj\u00fa n\u00e1dej, \u017ee aspo\u0148 jedno z\u00a0det\u00ed nebudeme musie\u0165 nosi\u0165 na ruk\u00e1ch. Ver\u00edme, \u017ee ADELI pom\u00f4\u017ee Lujze postavi\u0165 sa pevne na vlastn\u00e9 nohy a\u00a0chodi\u0165. To by bola pre n\u00e1s ve\u013ek\u00e1 pomoc a\u00a0obrovsk\u00e1 rados\u0165 v\u00a0\u017eivote.<\/p>\n
\u201eAby n\u00e1m mohli rodi\u010da zabezpe\u010di\u0165 v\u0161etko, \u010do je pre n\u00e1\u0161 \u017eivot potrebn\u00e9, vy\u017eaduje si to ve\u013ea finan\u010dn\u00fdch prostriedkov na rehabilit\u00e1cie, ktor\u00e9 pois\u0165ov\u0148a neprepl\u00e1ca. Tento rok budeme najviac financi\u00ed potrebova\u0165 na opakovan\u00e9 Lujzine cvi\u010denia v\u00a0ADELI centre v\u00a0Pie\u0161\u0165anoch.\u201c<\/strong><\/p>\n \u201eZa seba, za moje sestry a\u00a0za na\u0161ich skvel\u00fdch rodi\u010dov V\u00e1m \u010fakuje Laura a Lujza\u201c<\/strong><\/p>","protected":false},"excerpt":{"rendered":" \u201eVol\u00e1m sa Laura, v\u00a0J\u00fani 2022 budem ma\u0165 14 rokov. Narodila som sa s v\u00fdvojovou poruchou centr\u00e1lneho nervov\u00e9ho syst\u00e9mu a nesk\u00f4r mi\u00a0 stanovili diagn\u00f3zu septooptick\u00e1 dyspl\u00e1zia so stratou hypotalamo-hypofyz\u00e1rnych funkci\u00ed \u2013 agen\u00e9za septum pellucidum, hypopl\u00e1zia optick\u00fdch nervov. M\u00e1m v\u0161ak \u010fal\u0161ie probl\u00e9my. V\u00a0s\u00fa\u010dasnosti som sondovan\u00e1 kv\u00f4li dyskoordin\u00e1cii preh\u013atania a d\u00fdchania. Hust\u00fa stravu \u0165a\u017eko preh\u013atam, trv\u00e1 mi to ve\u013emi dlho. Preh\u013atanie tekut\u00edn mi rob\u00ed probl\u00e9my,\u00a0tie pr\u00edmam sondou. A\u00a0to najhor\u0161ie, kv\u00f4li d\u00fdchac\u00edm probl\u00e9mom a\u00a0aspir\u00e1cii stravy m\u00e1m zaveden\u00fa tracheost\u00f3miu. Kv\u00f4li nej nem\u00f4\u017eem, a ani neviem rozpr\u00e1va\u0165 a rodi\u010dia ma v\u00f4bec nepo\u010duj\u00fa. No staraj\u00fa sa o\u00a0m\u0148a fantasticky, odv\u010fa\u010dujem sa im aspo\u0148 \u00fasmevom, alebo tich\u00fdm smiechom.\u201c<\/p>","protected":false},"featured_media":149170,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"Lujza a Laura: Obe potrebujeme rehabilit\u00e1cie","_seopress_titles_desc":"n\u00e1dej, \u017ee aspo\u0148 jedno z det\u00ed nebudeme musie\u0165 nosi\u0165 na ruk\u00e1ch","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-149079","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/product\/149079","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/media\/149170"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/media?parent=149079"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/product_brand?post=149079"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/product_cat?post=149079"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/de\/wp-json\/wp\/v2\/product_tag?post=149079"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}N\u00e1\u0161 pr\u00edbeh Laura a\u00a0Lujza…. obe potrebujeme rehabilit\u00e1cie<\/strong><\/h2>\n