Natynka sa narodila v 37. t\u00fd\u017edni tehotenstva ako zdrav\u00e9 b\u00e1b\u00e4tko. Probl\u00e9my nastali hne\u010f na druh\u00fd de\u0148, kedy mala kr\u00e1tku apnoick\u00fa pauzu. Vtedy to v\u0161etko za\u010dalo. Nekone\u010dn\u00e1 s\u00e9ria vy\u0161etren\u00ed, \u010dakanie na v\u00fdsledky, prelo\u017eenie z novorodencov na patologick\u00fdch novorodencov a nakoniec na JIS-ku, kde n\u00e1m lek\u00e1ri ozn\u00e1mili, \u010do sa s na\u0161\u00edm diev\u010datkom deje. Uk\u00e1zalo sa, \u017ee Natka dostala sepsu (otravu krvi). Pre zhor\u0161enie stavu bola prechodne zaintubovan\u00e1. Nasaden\u00e1 lie\u010dba pomerne r\u00fdchlo zabrala, ale po zlep\u0161en\u00ed zdravotn\u00e9ho stavu nastal \u010fal\u0161\u00ed probl\u00e9m s intoleranciou na mlieko.<\/p>\n
Na z\u00e1klade genetick\u00e9ho vy\u0161etrenia n\u00e1m ozn\u00e1mili diagn\u00f3zu \u2013 Patauov syndr\u00f3m (\u010do je zriedkav\u00e1, so \u017eivotom m\u00e1lo zl\u00fa\u010dite\u013en\u00e1 abnormalita, 86% det\u00ed zomiera do jedn\u00e9ho roka). Po v\u0161etk\u00fdch negat\u00edvnych progn\u00f3zach, ktor\u00e9 sme v s\u00favislosti s touto diagn\u00f3zou dostali, sme mali len jedin\u00fd cie\u013e \u2013 dosta\u0165 ju do tak\u00e9ho zdravotn\u00e9ho stavu, aby sme si ju mohli odnies\u0165 domov. Po prepusten\u00ed do dom\u00e1ceho prostredia sme dostali zoznam odborn\u00fdch lek\u00e1rov, ktor\u00fdch bolo a je potrebn\u00e9 nav\u0161tevova\u0165 \u2013 rehabilt\u00e1cia, o\u010dn\u00e9, neurol\u00f3gia, ortop\u00e9dia, kardiol\u00f3gia a mnoh\u00e9 \u010fal\u0161ie. Od 3 mesiacov intenz\u00edvne rehabilitujeme.<\/p>\n
Koncom novembra 2012 sme na n\u00e1\u0161 podnet absolvovali e\u0161te jedno genetick\u00e9 vy\u0161etrenie v Martine, kde n\u00e1m pozmenili diagn\u00f3zu na \u201eParci\u00e1lna triz\u00f3mia 13. chromoz\u00f3mu\u201c. Ke\u010f\u017ee t\u00e1to diagn\u00f3za je ve\u013emi vz\u00e1cna, e\u0161te nevieme, \u010do v\u0161etko n\u00e1m so sebou prinesie.<\/p>\n
Aktu\u00e1lne je Natynka zatia\u013e na \u00farovni ro\u010dn\u00e9ho die\u0165a\u0165a \u2013 dok\u00e1\u017ee sedie\u0165, \u0161tvorno\u017ekova\u0165, postavi\u0165 sa, ale e\u0161te st\u00e1le nedok\u00e1\u017ee chodi\u0165 a tie\u017e in\u00e9 \u010dinnosti, ktor\u00e9 u\u017e deti v jej veku zvl\u00e1daj\u00fa. Absolvovali sme pobyt v ADELI Medical Center, ktor\u00fd Natynke ve\u013emi pomohol. Ver\u00edme, \u017ee aj v\u010faka Va\u0161ej pomoci si budeme m\u00f4c\u0165 pobyt v ADELI e\u0161te zopakova\u0165.<\/p>","protected":false},"excerpt":{"rendered":"
Vol\u00e1m sa Natynka, narodila som sa v j\u00fani 2012 a som jedno neoby\u010dajn\u00e9 diev\u010datko, ktor\u00e9mu osud \u201epodaroval\u201c vz\u00e1cnu genetick\u00fa diagn\u00f3zu. Aj napriek v\u0161etk\u00e9mu sa nevzd\u00e1vam a bojujem, aby som aj ja raz dok\u00e1zala v\u0161etko to, \u010do ostatn\u00e9 deti.<\/p>","protected":false},"featured_media":146554,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-146518","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/146518","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/146554"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=146518"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=146518"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=146518"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=146518"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}