M\u00e1 \u00faplne rozh\u00e1dzan\u00e9 vn\u00fatorn\u00e9 prostredie. Zistili mu metabolick\u00e9 a mitochondri\u00e1lne ochorenie spojen\u00e9 s DMO. Jeho telo nedok\u00e1\u017ee premie\u0148a\u0165 cukor ani bielkovinu. Vraj je prv\u00e9 die\u0165a, ktor\u00e9 eviduj\u00fa, \u017ee toto v\u0161etko pre\u017eil. U\u017e sme absolvovali opera\u010dn\u00fd z\u00e1krok ULZIBAT v Kladne (v m\u00e1ji 2017). Po tomto z\u00e1kroku s\u00fa nevyhnutn\u00e9 rehabilit\u00e1cie na rozh\u00fdbanie a spevnenie svalov kon\u010dat\u00edn. Uvid\u00ed sa \u010dasom, \u010di sa postav\u00ed na no\u017ei\u010dky. Po n\u00e1sledn\u00fdch kontrol\u00e1ch sa rozhodne, \u010di bud\u00fa potrebn\u00e9 \u010fal\u0161ie opera\u010dn\u00e9 z\u00e1kroky, \u010do sa t\u00fdka no\u017ei\u010diek. V\u0161etky \u010fal\u0161ie opera\u010dn\u00e9 z\u00e1kroky, lieky a zdravotn\u00e9 pom\u00f4cky s\u00fa finan\u010dne ve\u013emi n\u00e1kladn\u00e9.<\/p>\n
Za n\u00e1s oboch m\u00f4\u017eem s\u013e\u00fabi\u0165, \u017ee budeme bojova\u0165 zo v\u0161etk\u00fdch s\u00edl aj na\u010falej. Za pomoc budeme ve\u013emi v\u010fa\u010dn\u00ed. Verte mi, ak niekedy budete ma\u0165 mo\u017enos\u0165 uvidie\u0165 m\u00f4jho syn\u010deka, ak\u00fd je zlat\u00fd, sna\u017eiv\u00fd, ak\u00fd vie by\u0165 vesel\u00fd, ako c\u00edti ka\u017ed\u00fa pomoc, ako to v\u0161etko, \u010d\u00edm prech\u00e1dza, ale aj to, na \u010do sa te\u0161\u00ed, vidno v jeho kr\u00e1snych o\u010dk\u00e1ch, ur\u010dite neo\u013eutujete, \u017ee ste n\u00e1m v naj\u0165a\u017e\u0161\u00edch chv\u00ed\u013each v na\u0161om \u017eivote pomohli. Ver\u00edm, \u017ee Luka raz vyrastie a bude z neho \u0161\u0165astn\u00fd \u010dlovek.<\/p>\n
Chcela by som V\u00e1s uisti\u0165, ak sa rozhodnete m\u00f4jmu syn\u010dekovi pom\u00f4c\u0165, \u017ee Va\u0161e finan\u010dn\u00e9 prostriedky bud\u00fa pou\u017eit\u00e9 na \u00fa\u010dely, ktor\u00e9 odborn\u00edci navrhuj\u00fa a odpor\u00fa\u010daj\u00fa.<\/p>\n
\u010eAKUJEME<\/p>\n
PaedDr. Be\u00e1ta Ku\u0161mirekov\u00e1 & syn\u010dek Luka Kloko\u010d<\/p>","protected":false},"excerpt":{"rendered":"
V janu\u00e1ri 2014 som sekciou porodila syn\u010deka Luku. O \u017eivot bojoval takmer rok, ke\u010f v d\u00f4sledku nespr\u00e1vneho ur\u010denia term\u00ednu p\u00f4rodu prekonal viacn\u00e1sobn\u00fa sepsu a v prvom roku svojho \u017eivota v\u00f4bec nepoznal svoju postie\u013eku. Zato d\u00f4verne v\u0161etky nemocni\u010dn\u00e9 l\u00f4\u017eka od Starej \u013dubovne, cez Ke\u017emarok, Poprad, Ko\u0161ice, Bratislavu, a\u017e po Prahu. Potravu i na\u010falej prij\u00edma cez sondu rovno do \u017eal\u00fadka a jeho tel\u00ed\u010dko je v d\u00f4sledku spom\u00ednan\u00fdch probl\u00e9mov ve\u013emi slab\u00e9 a vy\u017eaduje trval\u00fa lie\u010dbu, ale hlavne n\u00e1kladn\u00e9 rehabilit\u00e1cie, aby jeho motorick\u00e9 funkcie \u00faplne nezlyhali.<\/p>","protected":false},"featured_media":146556,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-146524","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/146524","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/146556"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=146524"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=146524"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=146524"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=146524"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}