Do troch rokov som bol napojen\u00fd na kysl\u00edk. No podarilo sa nie\u010do, \u010do lek\u00e1ri v\u00f4bec neverili. Moji rodi\u010dia ma nau\u010dili jes\u0165, pi\u0165 aj sedie\u0165. Aj ke\u010f ma musia st\u00e1le k\u0155mi\u0165, pap\u00e1m norm\u00e1lne, \u010do je z\u00e1sluha rodi\u010dov a hlavne mami\u010dky. Tak\u00e1 l\u00edzanka mi napr\u00edklad uk\u00e1zala \u010daro chuti a tak dnes nemus\u00edm ma\u0165 v tele hadi\u010dku pre prij\u00edmanie potravy. Hoci plienkam som sa nevyhol a asi ani nikdy nevyhnem.<\/p>\n
Moje diagn\u00f3zy s\u00fa: \u0165a\u017ek\u00fd stupe\u0148 atrofie mozgu, tracheobronchomal\u00e1cia, retard\u00e1cia \u0165a\u017ek\u00e9ho stup\u0148a, epilepsia. M\u00f4j stav sa pomaly zlep\u0161uje, hlavne v\u010faka mojim rodi\u010dom, ktor\u00ed obetuj\u00fa v\u0161etko pre to aby som napredoval. Ver\u00edm, \u017ee tak ako ma mamina a ocino nau\u010dili jes\u0165, pi\u0165 a sedie\u0165, tak ma nau\u010dia s pomocou \u00fa\u017easn\u00fdch a skvel\u00fdch \u013eud\u00ed z ADELI Medical Centra aj beha\u0165. Ve\u013ek\u00fa n\u00e1dej na splnenie tohto sna n\u00e1m dali v ADELI v Pie\u0161\u0165anoch, kde som absolvoval na prelome m\u00e1ja a j\u00fana 2018 dvojt\u00fd\u017ed\u0148ov\u00fd neurorehabilita\u010dn\u00fd pobyt.<\/p>\n
M\u00f4j ocino pracuje, ale mami\u010dka je so mnou doma. Nem\u00f4\u017ee \u00eds\u0165 do pr\u00e1ce, preto\u017ee potrebujem nepretr\u017eit\u00fa opateru. Rehabilita\u010dn\u00e9 pobyty v ADELI s\u00fa ve\u013emi finan\u010dne n\u00e1ro\u010dn\u00e9 a rodi\u010dia ich z vlastn\u00fdch prostriedkov nedok\u00e1\u017eu zaplati\u0165. Preto sa obraciame na v\u0161etk\u00fdch dobr\u00fdch \u013eud\u00ed, aby n\u00e1m pomohli pri financovan\u00ed lie\u010dby pre n\u00e1\u0161ho Mare\u010dka.<\/p>\n
Prv\u00fd pobyt sme absolvovali aj v\u010faka skvel\u00fdm \u013eu\u010fom, zn\u00e1mym \u0161portovcom, \u0161portov\u00fdm klubom, sponzorom, ADELI Medical Centru a hlavne ob\u010danom Doln\u00fdch Vesten\u00edc. Akcie \u201e\u017dijeme hokejom pre Mareka\u201c boli zorganizovane v\u00a0rokoch 2018 a\u00a02019 za akt\u00edvnej \u00fa\u010dast\u00ed HK Doln\u00e9 Vestenice p.Martin Ferenc a p.Martin Polack\u00fd. S\u00fa\u010das\u0165ou akci\u00ed boli dra\u017eby darovan\u00fdch \u0161portov\u00fdch predmetov a\u00a0dresov na \u201eHokejport\u00e1l\u201c. Predmety do dra\u017eby pre Mareka darovali v\u00fdznamn\u00ed \u0161portovci a\u00a0\u0161portove kluby: Miroslav \u0160atan, Janko La\u0161\u00e1k, Marcel Hossa, Mi\u0161ko Valent, Frederik Folt\u00e1n, Branko Radivojevi\u010d, Miroslav Stoch, Adri\u00e1n Gu\u013ea, Franti\u0161ek Kub\u00edk, futbalov\u00e9 kluby M\u0160K \u017dilina, MFK Ru\u017eomberok, \u0160K Slovan Bratislava, AS Tren\u010d\u00edn, SK Sl\u00e1via Praha, hokejov\u00e9 kluby HC Ko\u0161ice, HKM Zvolen, HK Dukla Tren\u010d\u00edn, HK Nitra, HC Slovan Bratislava, HK Orange 20. V\u00fd\u0165a\u017eky z dra\u017eieb dresov boli pou\u017eit\u00e9 na pobyt Mareka v Adeli.<\/p>\n
S\u00fa\u010das\u0165ou akci\u00ed bola aj autogrami\u00e1da hokejistov Michala Valenta, Frederika Folt\u00e1na, Branka Radivojevi\u010da. Akciu podporilo mnoho sponzorov a firiem z obce a okolia a aj z cel\u00e9ho Slovenska. Obe akcie mali pripraven\u00e9 bohat\u00e9 tomboly ktor\u00fdch v\u00fd\u0165a\u017eok bol pou\u017eit\u00fd na pobyt v Adeli. Hlavn\u00e9 ceny do tomboly venovali Hotely Hotel Impozant**** Val\u010dianska dolina a Hotel Enci\u00e1n Donovaly.<\/p>\n
Ve\u013ek\u00e1 v\u010faka patr\u00ed aj p.Claudia Poidock a p.Erik Kol\u00e1\u0159 z Adeli.V\u010faka aj Nad\u00e1ci\u00ed Adeli. Je stra\u0161ne ve\u013ea \u013eud\u00ed ktor\u00ed pomohli a st\u00e1le pom\u00e1haj\u00fa n\u00e1\u0161mu Marekovi stava\u0165 sa na vlastn\u00e9 nohy. Je nemo\u017en\u00e9 ich v\u0161etk\u00fdch vymenova\u0165. Ve\u013ek\u00e1 v\u010faka patr\u00ed aj v\u0161etk\u00fdm darcom 2%, v\u010faka ktor\u00fdm m\u00f4\u017ee Marek aj v\u00a0roku 2021 rehabilitova\u0165 a absolvova\u0165 u\u017e svoj 8 neurorehabilita\u010dn\u00fd pobyt. Ve\u013ek\u00e9 \u010fakujeme patr\u00ed za pomoc aj zamestn\u00e1vate\u013eovi otca Mareka Obe\u0161vu, ktor\u00fd mu aj ve\u013emi vych\u00e1dza v \u00fastrety.<\/p>\n
Marekovi pobyty v ADELI ve\u013emi pom\u00e1haj\u00fa: u\u017e sa nau\u010dil samostatne chodi\u0165, \u010do je ve\u013ek\u00fd pokrok! Ver\u00edme tomu, \u017ee je ve\u013ek\u00e1 \u0161anca sa nau\u010di\u0165 aj \u010fal\u0161ie veci a\u00a0doktori ADELI to potvrdzuj\u00fa. Preto V\u00e1s pros\u00edme o pomoc, aby sme sa do ADELI mohli e\u0161te vr\u00e1ti\u0165.<\/p>\n
\u010eakujeme Marek, Zuzana a Mare\u010dek<\/p>","protected":false},"excerpt":{"rendered":"
Vol\u00e1m sa Marek Obe\u0161va, m\u00e1m 14 rokov a \u017eijem so svojimi rodi\u010dmi v Doln\u00fdch Vesteniciach. Mal som sedem mesiacov, ke\u010f som sa n\u00e1hle za\u010dal dusi\u0165. Nikto vtedy nevedel, \u017ee m\u00e1m vroden\u00fa srdcov\u00fa vadu a v\u0161etky tie \u0161n\u00farky v tele, na krv aj na kysl\u00edk s\u00fa akosi \u010dudne domotan\u00e9, a\u017e vznikne uzol, v\u0161etko sa na chv\u00ed\u013eu zastav\u00ed a nav\u017edy zmen\u00ed. Rodi\u010dia ma za\u010dali o\u017eivova\u0165 a zachr\u00e1nili mi \u017eivot. Absolvoval som oper\u00e1ciu srdie\u010dka, no u\u017e nikdy ni\u010d nebude ako predt\u00fdm. Odumrel mi mozog.<\/p>","protected":false},"featured_media":146654,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"Marek u\u017e sa nau\u010dil samostatne chodi\u0165, \u010do je ve\u013ek\u00fd pokrok!","_seopress_titles_desc":"Moje diagn\u00f3zy s\u00fa: \u0165a\u017ek\u00fd stupe\u0148 atrofie mozgu, tracheobronchomal\u00e1cia, retard\u00e1cia \u0165a\u017ek\u00e9ho stup\u0148a, epilepsia. M\u00f4j stav sa pomaly zlep\u0161uje, hlavne v\u010faka mojim rodi\u010dom, ktor\u00ed obetuj\u00fa v\u0161etko pre to aby som napredoval. Ver\u00edm, \u017ee tak ako ma mamina a ocino nau\u010dili jes\u0165, pi\u0165 a sedie\u0165, tak ma nau\u010dia s pomocou \u00fa\u017easn\u00fdch a skvel\u00fdch \u013eud\u00ed z ADELI Medical Centra aj beha\u0165. ","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-146619","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/146619","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/146654"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=146619"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=146619"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=146619"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=146619"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}