Ke\u010f sa bl\u00ed\u017eili Jankove druh\u00e9 narodeniny e\u0161te st\u00e1le nechodil s\u00e1m. Za\u010dali sme sa b\u00e1\u0165 a objednali ho na neurologick\u00e9 vy\u0161etrenie, kde n\u00e1m povedali, \u017ee m\u00f4\u017ee \u00eds\u0165 o diagn\u00f3zu DMO. Nemohli sme tomu uveri\u0165. Dovtedy sme netu\u0161ili, \u017ee existuje forma tohto ochorenia. Poznali sme iba tie naj\u0165a\u017e\u0161ie, ale postupne tomu za\u010dalo nasved\u010dova\u0165 viac pr\u00edznakov a potvrdilo n\u00e1m to aj vy\u0161etrenie magnetickou rezonanciou.<\/p>\n
Dok\u00e1\u017ee si sadn\u00fa\u0165, postavi\u0165 sa s oporou, u\u017e aj \u0161tvorno\u017ekuje, chod\u00ed okolo n\u00e1bytku, dok\u00e1\u017ee sa pres\u00fava\u0165 po kolen\u00e1ch. \u017dia\u013e, sa mu skracuj\u00fa \u0161\u013eachy, \u010do mu br\u00e1ni v tom, aby riadne do\u0161\u013eapoval na cel\u00fa n\u00f4\u017eku. Radi by sme sa vyhli oper\u00e1cii, no na to je potrebn\u00e9 tie\u017e intenz\u00edvne cvi\u010denie. Lek\u00e1ri odpor\u00fa\u010daj\u00fa rehabilitova\u0165. To jedin\u00e9 mu m\u00f4\u017ee pom\u00f4c\u0165 postavi\u0165 sa na vlastn\u00e9 nohy. Medzit\u00fdm sa n\u00e1m narodila vyt\u00fa\u017een\u00e1 dc\u00e9ra Barborka. M\u00e1 1 rok a 2 mesiace, u\u017e sama aj chod\u00ed a Janko zatia\u013e smutne pozer\u00e1 na \u0148u ako si sama cupit\u00e1 kam sa jej zachce.<\/p>\n
Janko bude ma\u0165 u\u017e 4 roky a st\u00e1le nedok\u00e1\u017ee chodi\u0165 s\u00e1m. Niekedy je n\u00e1ro\u010dn\u00e9 vyplni\u0165 potreby oboch det\u00ed naraz, hlavne ke\u010f je man\u017eel v pr\u00e1ci. Ve\u013eakr\u00e1t pom\u00e1ha aj rodina, aby sme to v\u0161etko lep\u0161ie zvl\u00e1dli. Chceli by sme dopria\u0165 Jankovi \u010dastej\u0161ie rehabilit\u00e1ciu v ADELI v Pie\u0161\u0165anoch, preto pros\u00edme \u013eud\u00ed s dobr\u00fdm srdcom o ak\u00fako\u013evek finan\u010dn\u00fa pomoc.<\/p>\n
\u010eakujeme V\u00e1m!<\/p>","protected":false},"excerpt":{"rendered":"
Po naroden\u00ed n\u00e1\u0161ho vyt\u00fa\u017een\u00e9ho syna Janka sme mysleli, \u017ee je to \u00faplne zdrav\u00e9 die\u0165atko. Napredoval s\u00edce pomal\u0161ie ako ostatn\u00e9 deti, no pripisovali sme to sk\u00f4r tomu, \u017ee o chlapcoch sa hovor\u00ed, vraj s\u00fa lenivej\u0161\u00ed. Ka\u017ed\u00e9 die\u0165a je in\u00e9 a napreduje svojim tempom. Ne\u0161tvorno\u017ekoval, \u010do tie\u017e mnoho det\u00ed dok\u00e1\u017ee presko\u010di\u0165 a postav\u00ed sa na vlastn\u00e9 n\u00f4\u017eky.<\/p>","protected":false},"featured_media":147104,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-147011","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/147011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/147104"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=147011"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=147011"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=147011"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=147011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}