Hne\u010f ako sa moja maminka \u010do len tro\u0161ku zotavila po p\u00f4rode cis\u00e1rskym rezom, mohla by\u0165 hospitalizovan\u00e1 na oddelenie ku mne. Za\u010dal sa ta\u017ek\u00fd boj o pitie matersk\u00e9ho mlie\u010dka. Nemal som vyvinut\u00fd sac\u00ed reflex, tak\u017ee som nemohol pi\u0165 matersk\u00e9 mlieko z prsn\u00edka, ale pokusom z f\u013ea\u0161e a z\u00e1rove\u0148 som musel by\u0165 sondovan\u00fd a pomocou sondy dokrmovan\u00fd. Pobudol som v\u00a0inkub\u00e1tore 5 dlh\u00fdch dn\u00ed. Na \u0161iesty de\u0148 ma mohli lek\u00e1ri vybra\u0165 z inkub\u00e1tora do perinky a tak mohla moja maminka so mnou za\u010dat cvi\u010dit cviky Vojtovej metody, ktor\u00e9 pom\u00e1haju b\u00e1b\u00e4tk\u00e1m k zlep\u0161eniu motoriky. Nebolo to v\u0161ak jednoduch\u00e9, preto\u017ee som nedok\u00e1zal nijako da\u0165 na vedomie, \u017ee na tieto podnety reagujem. Ve\u013ek\u00fa staros\u0165 robila lek\u00e1rom a mojim rodi\u010dom apatia, ktor\u00e1 v\u0161etk\u00fdch priv\u00e1dzala k ve\u013ek\u00fdm pochybnostiam, \u010di sa m\u00f4j zdravotn\u00fd stav niekedy zlep\u0161\u00ed.<\/p>\n
Po troch t\u00fd\u017ed\u0148och od narodenia sme boli s maminkou prepusten\u00ed z nemocnice domov. Vedel som pi\u0165 mlie\u010dko z f\u013ea\u0161e. Ked\u017ee m\u00f4j pr\u00edchod na svet sprev\u00e1dzali \u0165a\u017ekosti, mus\u00edm by\u0165 sledovan\u00fd odborn\u00fdmi lek\u00e1rmi ako s\u00fa: neonatol\u00f3g, neurol\u00f3g, ortop\u00e9d, urol\u00f3g, endokrinol\u00f3g. Z\u00e1rove\u0148 som pod doh\u013eadom rehabilita\u010dn\u00e9ho lek\u00e1ra.<\/p>\n
Hoci som na tomto svete e\u0161te len jeden rok, vybojoval som prv\u00e9 pokroky. Hoci sa m\u00f4\u017ee zda\u0165, \u017ee h\u00fdba\u0165 sa a dr\u017ea\u0165 vzpriamene chrb\u00e1tik a hl\u00e1vku je jednoduch\u00e1 vec\u2026 nie, nie je! Aby som dok\u00e1zal urobi\u0165 a be\u017ene pou\u017e\u00edva\u0165 tieto \u201eoby\u010dajn\u00e9\u201c pohyby, mus\u00edm aspo\u0148 3-kr\u00e1t denne cvi\u010di\u0165 pomocou Vojtovej met\u00f3dy, absolovova\u0165 pravideln\u00e9 rehabilita\u010dn\u00e9 pobyty, pr\u00edjima\u0165 ve\u013ea podnetov a hlavne NAU\u010cI\u0164 sa tieto podnety pr\u00edjima\u0165. Aby sa tak stalo, predch\u00e1dza\u0165 by mali tomu aj in\u00e9 terapie ako s\u00fa oxygenoterapia, ergoterapia, pl\u00e1vanie, hipoterapia a\u00a0\u010fal\u0161ie. Absolvoval som rehabilita\u010dn\u00e9 pobyty v\u00a0Martine, ktor\u00e9 hrad\u00ed pois\u0165ov\u0148a a r\u00e1d\u00a0by som absolvoval aj pobyt v\u00a0ADELI v\u00a0Pie\u0161\u0165anoch.<\/p>\n
V tomto \u010dase mi diagnostikovali na genetike Prader-Williho syndr\u00f3m. Zaost\u00e1vam v motorickom a ment\u00e1lnom v\u00fdvine, m\u00e1m nezost\u00fapen\u00e9 semen\u00edky, som hypotonik. V\u0161etky tieto pr\u00edznaky spadaj\u00fa pr\u00e1ve na spom\u00ednan\u00fa diagn\u00f3zu.<\/p>\n
M\u00e1m u\u017easn\u00fdch rodi\u010dov a m\u00f4jho ve\u013ek\u00e9ho 5 ro\u010dn\u00e9ho brata Pa\u013eka, ktor\u00ed ma nadov\u0161etko \u013e\u00fabia a urobia v\u0161etko preto, aby som napredoval. M\u00f4j bra\u010dek Pa\u013eko chce so mnou hr\u00e1va\u0165 futbal, beha\u0165 a sk\u00e1ka\u0165. Ver\u00ed, \u017ee tak ako sa on nau\u010dil chodi\u0165, hra\u0165 sa, s\u00e1m jes\u0165, pi\u0165, tak sa to podar\u00ed aj mne. U\u017e p\u00e1r t\u00fd\u017ednov sa dok\u00e1\u017eem usmieva\u0165 a v\u010faka tomu sa do na\u0161ich \u017eivotov dostalo slnie\u010dko. Snaha mojich najbli\u017e\u0161\u00edch v\u0161ak niekedy, \u017eia\u013e, nesta\u010d\u00ed. Tak ako v\u00a0in\u00fdch rodin\u00e1ch, aj v mojej rodine s\u00fa finan\u010dn\u00e9 prostriedky obmedzen\u00e9 a ur\u010den\u00e9 pre fungovanie celej mojej rodiny. Ja v\u0161ak potrebujem omnoho viac.<\/p>\n
Svojim pr\u00edbehom by som r\u00e1d oslovil v\u0161etk\u00fdch V\u00e1s, ktor\u00ed by ste mi vedeli akouko\u013evek formou pom\u00f4c\u0165 a mojim rodi\u010dom z \u010dasti u\u013eah\u010di\u0165 boj o pokroky a kroky v mojom \u017eivote, aby som sa mohol dosta\u0165 do ADELI.<\/p>\n
Za Va\u0161u pomoc V\u00e1m vopred \u010fakujem!<\/p>\n
Pe\u0165ko Husanica s\u00a0rodinou<\/p>","protected":false},"excerpt":{"rendered":"
Vol\u00e1m sa Pe\u0165ko Husanica a narodil som sa v marci 2018. Ned\u00e1vno som oslavoval svoje druh\u00e9 narodeniny. Pri\u0161iel som na svet o p\u00e1r t\u00fd\u017ed\u0148ov sk\u00f4r, \u010di\u017ee v 37. t\u00fd\u017edni tehotenstva. De\u0148 pred moj\u00edm naroden\u00edm sa maminke zhor\u0161il zdravotn\u00fd stav, n\u00e1sledne bol zisten\u00fd hrani\u010dn\u00fd CTG z\u00e1znam a pritomn\u00fd polyhydramnion. Narodil som sa cis\u00e1rskym rezom a rados\u0165 z m\u00f4jho narodenia vystriedal strach o moje zdravie. Lek\u00e1ri ozn\u00e1mili mojim rodi\u010dom, \u017ee nastalo u m\u0148a ko\u017en\u00e9 krv\u00e1canie a v\u0161etko poukazuje na \u0165a\u017ek\u00fa hypotoniu. Nasledoval okam\u017eit\u00fd transport z ke\u017emarskej do popradskej nemocnice, kde na Oddelen\u00ed patologick\u00fdch novorodencov\u00a0 maj\u00fa potrebn\u00e9 vybavenie.<\/p>","protected":false},"featured_media":147131,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-147078","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/147078","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/147131"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=147078"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=147078"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=147078"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=147078"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}