Som usmievav\u00fd, zvedav\u00fd chlap\u010dek s\u00a0kr\u00e1snymi ve\u013ek\u00fdmi o\u010dami. Ke\u010f som mal pol roka rodi\u010dia za\u010dali pozorova\u0165, \u017ee zaost\u00e1vam v\u00a0pohybe za rovesn\u00edkmi. Odvtedy pravidelne rehabilitujem. Ke\u010f som mal 11 mesiacov bol som hospitalizovan\u00fd v\u00a0DFN v\u00a0Ko\u0161iciach s\u00a0podozren\u00edm na svalov\u00e9 ochorenie. Na z\u00e1klade genetick\u00fdch testov mi po roku a\u00a0pol \u010dakania na ich v\u00fdsledky bola stanoven\u00e1 diagn\u00f3za. Ide o\u00a0zriedkav\u00e9 genetick\u00e9 ochorenie svalov\u00e1 dystrofia Duchenne, na z\u00e1klade g\u00e9novej mut\u00e1cie. Toto ochorenie mi bolo diagnostikovan\u00e9 ako piatemu die\u0165a\u0165u na Slovensku. Ochorenie sa prejavuje od \u00fatleho veku ub\u00fadan\u00edm svalovej hmoty, preto je pre m\u0148a pravideln\u00e1 rehabilit\u00e1cia ve\u013emi d\u00f4le\u017eit\u00e1.<\/p>\n
Moment\u00e1lne som absolvoval svoj prv\u00fd 2-t\u00fd\u017ed\u0148ov\u00fd pobyt v ADELI Medical Centre, kde u\u017e po\u010das neho boli vidite\u013en\u00e9 prv\u00e9 pokroky. Vzh\u013eadom k tomu, \u017ee si vy\u017eadujem zv\u00fd\u0161en\u00fa starostlivos\u0165 a pravideln\u00e9 cvi\u010denia, mamka sa nem\u00f4\u017ee vr\u00e1ti\u0165 do pr\u00e1ce a je so mnou doma. Preto nie je v mo\u017enostiach mojich rodi\u010dov absolvova\u0165 pobyty v ADELI z vlastn\u00fdch zdrojov.<\/p>\n
Na moje ochorenie zatia\u013e neexistuje liek. Existuje v\u0161ak liek, ktor\u00fd potl\u00e1\u010da prejavy ochorenia, ten je v\u0161ak ve\u013emi n\u00e1kladn\u00fd a\u00a0ja m\u00e1m lie\u010dbu zatia\u013e schv\u00e1len\u00fa iba do konca septembra.<\/p>\n
Pre mojich rodi\u010dov som v\u0161etk\u00fdm a\u00a0budeme pokra\u010dova\u0165 v\u00a0boji napriek ne\u013eahkej situ\u00e1cii. Ja ve\u013emi chcem napredova\u0165, \u010do d\u00e1vam svojmu okoliu najavo. Ak by bolo vo va\u0161ich sil\u00e1ch pom\u00f4c\u0165 mi v\u00a0mojom boji, ja a\u00a0moji rodi\u010dia V\u00e1m budeme ve\u013emi v\u010fa\u010dn\u00ed.<\/p>","protected":false},"excerpt":{"rendered":" Vol\u00e1m sa Oliver, pred p\u00e1r d\u0148ami som osl\u00e1vil tretie narodeniny. Som vyt\u00fa\u017een\u00e9 die\u0165a svojich rodi\u010dov. Tehotenstvo prebiehalo bez probl\u00e9mov, na z\u00e1klade vy\u0161etren\u00ed a\u00a0dopl\u0148uj\u00facich ultrazvukov sa moji rodi\u010dia te\u0161ili na zdrav\u00e9 b\u00e1b\u00e4tko.<\/p>\n<\/div>\n<\/section>","protected":false},"featured_media":147272,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-147202","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/147202","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/147272"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=147202"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=147202"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=147202"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=147202"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}