Laurinka sa hne\u010f po naroden\u00ed kr\u00e1sne zadaptovala, ale mne mame sa st\u00e1le nie\u010do nep\u00e1\u010dilo (doma som mala u\u017e dve kr\u00e1sne dc\u00e9rky, a teda aj dos\u0165 sk\u00fasenost\u00ed na zhodnotenie situ\u00e1cie) a moje obavy sa potvrdili… \u0160tyri dni po pr\u00edchode z p\u00f4rodnice musela by\u0165 Laurinka hospitalizovan\u00e1 v \u017diline kv\u00f4li mas\u00edvnemu vracaniu \u017elt\u00fdch \u0161tiav a na druh\u00fd de\u0148 ju sanitkou pres\u00favali do Martina na JIS s podozren\u00edm na ileus (zauzlenie \u010driev). T\u00e1to diagn\u00f3za sa nepotvrdila, no pobudla si tam 6 dn\u00ed. Kopec r\u00f6ntgenovania, pozorovania, vy\u0161etren\u00ed, hadi\u010diek. Po n\u00e1vrate domov sa z nej dve sestri\u010dky ve\u013emi te\u0161ili, \u017eia\u013e len nakr\u00e1tko, lebo vracanie sa op\u00e4\u0165 vr\u00e1tilo a museli sme \u00eds\u0165 zase do nemocnice, op\u00e4\u0165 na JISku, tento raz do \u017diliny. Chodili sme po vy\u0161etreniach, no st\u00e1le sa prav\u00e1 pr\u00ed\u010dina nena\u0161la. Po siedmych d\u0148och n\u00e1s pustili a my sme sa mohli zase te\u0161i\u0165 doma aj so sestri\u010dkami, ktor\u00e9 sa o Laurinku pr\u00edkladne starali. Po \u0161tyroch d\u0148och sa scen\u00e1r zopakoval, a tak som sa sna\u017eila Laurinku zavodni\u0165 doma, ale nepodarilo sa a na sklonku d\u0148a sme museli op\u00e4\u0165 nav\u0161t\u00edvi\u0165 JISku v \u017diline, kde n\u00e1s u\u017e \u010dakali, ke\u010f\u017ee som lek\u00e1rov informovala e\u0161te po\u010das d\u0148a. Tentokr\u00e1t som u\u017e vedela, \u017ee probl\u00e9m bude v mojom mlieku a okam\u017eite som Laurinku odstavila. Laurinka je odvtedy na umelom mlie\u010dku, prospieva a aj ke\u010f m\u00e1 diagnostikovan\u00fd mas\u00edvny reflux, zvl\u00e1dame to (e\u0161te, \u017ee existuj\u00fa automatick\u00e9 pr\u00e1\u010dky :).<\/p>\n
Po vyrie\u0161en\u00ed prv\u00e9ho probl\u00e9mu museli lek\u00e1ri za\u010da\u0165 rie\u0161i\u0165 \u010fal\u0161ie nezrovnalosti, ktor\u00e9 diagnostikovali po mojom naroden\u00ed alebo po\u010das pobytu v nemocnici \u2013 ve\u013ea krvi\u010dky mi brali na endokrinol\u00f3giu, lebo kol\u00edsali horm\u00f3ny, na genetiku, kde sa vtedy \u017eiaden syndr\u00f3m nepotvrdil… Robili sa aj na metabolick\u00e9 testy. Na genetike pani doktorka povedala maminke, \u017ee m\u00e1m men\u0161iu hlavi\u010dku, krat\u0161ie ruky aj nohy. Samozrejme, \u017ee sme nav\u0161t\u00edvili aj kardiol\u00f3giu a sme v pozorovan\u00ed.<\/em><\/p>\n Maminka chodila po vy\u0161etreniach so mnou a st\u00e1le sme \u010dakali na stanovenie diagn\u00f3zy. Ke\u010f som sa v polroku neot\u00e1\u010dala, maminka \u0161\u00edpila, \u017ee nie\u010do nebude v poriadku. Poslali n\u00e1s na neurol\u00f3giu a rehabilit\u00e1cie. Z neurol\u00f3gie na magnetick\u00fa rezonanciu a o\u010dn\u00e9 oddelenie. Magnetick\u00e1 rezonancia v Banskej Bystrici potvrdila nezvr\u00e1tite\u013en\u00e9 \u2013 Agen\u00e9za Corpus Callosum a mierna cerebr\u00e1lna artrofia. Maminka ve\u013emi plakala, jej najhor\u0161ie obavy sa potvrdili… no nevzdala sa a od septembra 2019 za\u010dala so mnou intenz\u00edvne rehabilitova\u0165. Najprv Vojtovou met\u00f3dou a potom od okt\u00f3bra aj Bobath koncept (ve\u013emi jej pomohli skvel\u00e9 fyzioterapeutky). Dennodenne so mnou cvi\u010dila aj doma. Chodila so mnou aj dvakr\u00e1t do t\u00fd\u017ed\u0148a na injekcie (cerebrol\u00edzin). V janu\u00e1ri 2020 sme boli na lie\u010den\u00ed v Dunajskej Lu\u017enej a ke\u010f sme sa vr\u00e1tili, sama som si sadla \u2013 mala som necel\u00fdch 16 mesiacov. O dva t\u00fd\u017edne som si aj sama k\u013eakla.\u00a0 Vo febru\u00e1ri sme \u0161li na lie\u010denie do ADELI Medical Centra v Pie\u0161\u0165anoch, do ktor\u00e9ho sa n\u00e1m podarilo dosta\u0165 v\u010faka dobr\u00fdm \u013eu\u010fom, ktor\u00ed n\u00e1m pomohli. Aj napriek tomu, \u017ee cvi\u010denie bol\u00ed a v\u00f4bec ma nebav\u00ed, maminka povedala, \u017ee budeme pokra\u010dova\u0165. Chce ma vidie\u0165 beha\u0165 so sestrami. Zatia\u013e neviem, \u010do to je, ale asi to bude z\u00e1bava…<\/em><\/p>\n Je to n\u00e1ro\u010dn\u00e1 a ve\u013emi dlh\u00e1 cesta. Laurinka nav\u0161tevuje 8 odborn\u00fdch ambulanci\u00ed (gastroenterol\u00f3gia, endokrinol\u00f3gia, genetika, kardiol\u00f3gia, neurol\u00f3gia, oftalmol\u00f3gia, logop\u00e9dia, ortop\u00e9dia), je dos\u0165 chor\u013eav\u00e1, no zvl\u00e1da to v\u00fdborne. Je to \u0161ikovn\u00e9 mal\u00e9 diev\u010datko, ktor\u00e9 sa rado ja\u0161\u00ed so svojimi sestri\u010dkami. Nem\u00e1 rada dotyk a nem\u00e1 rada objatia, no ja si ju aj tak rada priviniem k sebe. V\u010faka mojej rodine a dobr\u00fdm \u013eu\u010fom, ktor\u00fdch m\u00e1me okolo seba, sa n\u00e1m kr\u00e1\u010da tro\u0161ku \u013eah\u0161ie. No ma\u0165 v\u0161etku \u0165archu tohto kr\u00ed\u017ea na svojich pleciach je neskuto\u010dne n\u00e1ro\u010dn\u00e9 a pe\u0148a\u017en\u00e9 prostriedky, ktor\u00e9 m\u00e1me k dispoz\u00edcii, s\u00fa zna\u010dne obmedzen\u00e9. Pokr\u00fdvaj\u00fa iba na\u0161e z\u00e1kladn\u00e9 potreby. Bohu\u017eia\u013e, v\u00fddavkov spojen\u00fdch s rehabilit\u00e1ciami a lie\u010dbou je st\u00e1le viac. Sme odk\u00e1zan\u00e9 na pomoc dobr\u00fdch \u013eud\u00ed okolo n\u00e1s. Za ak\u00fako\u013evek pomoc zo srdca \u010fakujeme.<\/p>\n Laurinka a\u00a0mama Veronika<\/p>","protected":false},"excerpt":{"rendered":" Vol\u00e1m sa Laurinka a narodila som sa v riadnom term\u00edne, v 39. t\u00fd\u017edni. Tehotenstvo by bolo po zdravotnej str\u00e1nke relat\u00edvne bezprobl\u00e9mov\u00e9, a\u017e na ve\u013ek\u00e9 tr\u00e1penie maminky Veroniky. Ocko sa sa nejak\u00fd \u010das po mojom naroden\u00ed s maminkou\u00a0 rozviedol a od mojich \u0161iestich t\u00fd\u017ed\u0148ov sme doma sam\u00e9 s maminkou a mojimi dvoma star\u0161\u00edmi sestri\u010dkami, Al\u017ebetkou a Karol\u00ednkou. Moje komplikovan\u00e9 zdravotn\u00e9 probl\u00e9my sa tak v\u0161etky spolo\u010dne sna\u017e\u00edme stato\u010dne zvl\u00e1dnu\u0165.<\/p>","protected":false},"featured_media":147479,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-147423","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/147423","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/147479"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=147423"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=147423"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=147423"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=147423"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}