Ako \u0161iel \u010das, rodi\u010dia si za\u010dali v\u0161\u00edma\u0165 na Evelinke zl\u00e9 dr\u017eanie tela. Mala ve\u013emi slab\u00e9 svalstvo a\u00a0nevl\u00e1dala sama dr\u017ea\u0165 hlavi\u010dku. Nasledovali desiatky vy\u0161etren\u00ed, rodi\u010dia mali ve\u013ea ot\u00e1zok, no nikto nevedel odpovede. Dnes u\u017e rodi\u010dia diagn\u00f3zy poznaj\u00fa \u2013 Malan syndr\u00f3m (Sotos syndr\u00f3m) \u2013 na svete je len 7 pacientov s\u00a0t\u00fdmto ochoren\u00edm, Evelinka je jedn\u00fdm z\u00a0nich. A\u00a0\u010fal\u0161ie diagn\u00f3zy ako: Cylinder,nedomykav\u00e1 chlop\u0148a v srdie\u010dku a detsk\u00e1 mozgov\u00e1 obrna.<\/p>\n
Do ADELI pri\u0161li prv\u00fdkr\u00e1t ke\u010f mala 3 roky. Evelinka nevedela chodi\u0165, pohybovala sa pomocou ru\u010di\u010diek. Rehabilit\u00e1cia bola finan\u010dne n\u00e1ro\u010dn\u00e1 a pomohla im star\u00e1 mama. T\u00e1 si vzala na prv\u00fd pobyt \u00faver. Na \u010fal\u0161ie rehabilit\u00e1cie si Evelinka zbierala financie z \u00a02% z\u00a0dan\u00ed a\u00a0zbierala vrchn\u00e1\u010diky. Rehabilit\u00e1cie v\u00a0ADELI Evelinke nesmierne pom\u00e1haj\u00fa. Maminka pochva\u013euje rodinn\u00fd pr\u00edstup a\u00a0to, \u017ee Evelinka m\u00e1 s\u00a0person\u00e1lom n\u00e1dhern\u00fd vz\u0165ah. Najviac sa im p\u00e1\u010di hyperbarick\u00e1 komora, do ktorej sa chc\u00fa vr\u00e1ti\u0165 op\u00e4\u0165.<\/p>\n
Dnes m\u00e1 Evelinka 12 rokov a\u00a0vie st\u00e1\u0165. Je to mil\u00e1, vysmiata, mlad\u00e1 sle\u010dna. Chod\u00ed do \u0161koly, rada kresl\u00ed a m\u00e1 ve\u013emi rada spolo\u010dnos\u0165 ostatn\u00fdch det\u00ed. Je v\u0161ak odk\u00e1zan\u00e1 na pomoc svojej maminky. Evelinke pom\u00e1ha taktie\u017e maminkin man\u017eel Miroslav a mlad\u0161\u00ed bra\u010dek Matias, maj\u00fa spolu kr\u00e1sny vz\u0165ah a\u00a0radi spolu tr\u00e1via \u010das. Lek\u00e1ri jej odpor\u00fa\u010daj\u00fa absolvova\u0165 rehabilit\u00e1cie \u0161tyrikr\u00e1t do roka. To je v\u0161ak finan\u010dne n\u00e1ro\u010dn\u00e9 pre rodi\u010dov.<\/p>\n
Pom\u00f4\u017eme Evelinke na ceste za prv\u00fdmi slovami, \u010di krokmi.<\/strong><\/p>\n Pom\u00f4\u017eme Evelinke vr\u00e1ti\u0165 sa do ADELI a robi\u0165 pokroky. \u00a0<\/strong><\/p>\n \u010eakujeme.<\/strong><\/p>","protected":false},"excerpt":{"rendered":" \u201ePrajem si, aby Evelinka za\u010dala rozpr\u00e1va\u0165. Od 5 rokov hovor\u00ed mama ka\u017ed\u00e9mu, aj V\u00e1m by povedala mama, \u201c hovor\u00ed energick\u00e1 mamina.<\/strong><\/p>\n Evelinka pri\u0161la na svet ako vyt\u00fa\u017een\u00e9 b\u00e1b\u00e4tko. Nikto v\u0161ak netu\u0161il, ak\u00fd \u0165a\u017ek\u00fd osud bude \u010daka\u0165 ju a\u00a0jej najbli\u017e\u0161\u00edch. Po\u010das p\u00f4rodu pri\u0161lo k\u00a0\u0165a\u017ek\u00fdm komplik\u00e1ci\u00e1m. Zakliesnenie v\u00a0lonovej kosti a\u00a0n\u00e1sledn\u00e1 v\u00e1kuov\u00e1 extrakcia. Nepr\u00edjemn\u00fd p\u00f4rod sa \u0161karedo podp\u00edsal na bezbrannej \u00a0Evelinke. Zlomen\u00e9 k\u013e\u00fa\u010dne kosti a\u00a0vytrhnut\u00fd ramenn\u00fd pletenec.<\/p>","protected":false},"featured_media":149149,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"Na svete je len 7 pacientov s t\u00fdmto ochoren\u00edm...","_seopress_titles_desc":"Pom\u00f4\u017eme Evelinke na ceste za prv\u00fdmi krokmi. ","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-149052","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/149052","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/149149"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=149052"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=149052"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=149052"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=149052"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}