Po zmene pediatri\u010dky sa \u013eady trochu pohli. Chlap\u010deka kone\u010dne hospitalizovali a\u00a0magnetick\u00e1 rezonancia priniesla smutn\u00e9 spr\u00e1vy: v\u00e1\u017ene po\u0161koden\u00fd mozog \u2013 atrofia bielej mozgovej hmoty, atrofia sp\u00e1nkov\u00e9ho aj pam\u00e4\u0165ov\u00e9ho laloka, k\u00a0tomu mikrocef\u00e1lia. \u201eKa\u017ed\u00fd lek\u00e1r len kr\u00fatil hlavou, \u017ee s\u00a0tak\u00fdm nie\u010d\u00edm sa e\u0161te nestretol. Synovi nevedia stanovi\u0165 diagn\u00f3zu, nevieme \u010di a\u00a0ako ho lie\u010di\u0165, netu\u0161\u00edme, \u010di by mu nepomohla napr\u00edklad g\u00e9nov\u00e1 terapia,\u201c hovor\u00ed obetav\u00e1 mama Marie.\u00a0 Dami\u00e1n bude ma\u0165 dva roky, ale ment\u00e1lne aj fyzicky ostal na \u00farovni 4 mesa\u010dn\u00e9ho b\u00e1b\u00e4tka. Nesed\u00ed, neloz\u00ed, nedok\u00e1\u017ee sa napi\u0165, zvl\u00e1dne sa len preto\u010di\u0165 na bru\u0161ko.<\/p>\n
Aktu\u00e1lne s\u00fa v\u00a0kontakte s\u00a0klinikou v\u00a0Lond\u00fdne, ktor\u00e1 sa \u0161pecializuje na diagnostiku vz\u00e1cnych ochoren\u00ed, kontakt na nich dostali po\u010das ich prv\u00e9ho pobytu v\u00a0Adeli Medical Center. Do Pie\u0161\u0165an sa zas dostali v\u010faka internetu. Doma, v\u00a0\u010cech\u00e1ch, nevedeli n\u00e1js\u0165 zariadenie, ktor\u00e9 poskytuje rehabilit\u00e1cie s\u00a0ubytovan\u00edm v\u00a0jednom komplexe.<\/p>\n
Marie: \u201ePri\u0161li sme do Adeli a\u00a0boli sme nad\u0161en\u00ed. Dami\u00e1nkovi tu pomohli s\u00a0jemnou motorikou, nau\u010dil sa otv\u00e1ra\u0165 ruky, v\u00a0dlani zrazu udr\u017eal \u013eahk\u00fa hra\u010dku. Pre n\u00e1s to bol obrovsk\u00fd posun. Daminko s\u00edce v\u0161etky terapie preplakal,\u00a0 ale profesionalita zamestnancov, v\u00fdsledky cvi\u010den\u00ed ako aj okolie centra bolo pre n\u00e1s kr\u00e1snou odmenou.\u201c<\/p>\n
K\u00fdm sa dozvedia nov\u00e9 spr\u00e1vy z\u00a0Lond\u00fdna (nateraz sa \u010dak\u00e1 na v\u00fdsledky celoexomov\u00e9ho sekvenovania), potrebuj\u00fa \u010do najviac rehabilitova\u0165. Intenz\u00edvny pobyt v\u00a0Adeli sa im ve\u013emi osved\u010dil a\u00a0radi by ho znovu absolvovali. Ve\u013ek\u00fdm snom a\u00a0m\u00e9tou je, aby sa Dami\u00e1nko posadil a\u00a0za\u010dal rozpr\u00e1va\u0165. \u00a0Rodi\u010dia veria, \u017ee s\u00a0pomocou dobr\u00fdch \u013eud\u00ed sa do Adeli op\u00e4\u0165 dostan\u00fa.<\/p>","protected":false},"excerpt":{"rendered":"
Pri\u0161iel na svet ako vyt\u00fa\u017een\u00e9 die\u0165a a\u00a0pre svojich rodi\u010dov je najv\u00e4\u010d\u0161\u00edm \u0161\u0165ast\u00edm v\u00a0\u017eivote. Aj napriek tomu, \u017ee ni\u010d nie je tak ako by chceli. Dami\u00e1nko sa narodil v\u00a0auguste\u00a0 2022 a\u00a0len kratu\u010dk\u00fa chv\u00ed\u013eu sa zdalo, \u017ee chlap\u010dek je zdrav\u00fd. Bohu\u017eia\u013e, opak je pravdou.<\/p>\n
Mama Marie za\u010dala ma\u0165 zl\u00e9 predtuchy u\u017e po prv\u00fdch mesiacoch. Dami\u00e1nko toti\u017e takmer v\u00f4bec nespal, dok\u00e1zal prebdie\u0165 aj 20 hod\u00edn, neust\u00e1le plakal,\u00a0 nevydr\u017eal v\u00a0ko\u010d\u00edku ani v\u00a0nos\u00edtku. A\u00a0ke\u010f na to upozor\u0148ovala lek\u00e1rov, sna\u017eili sa z nej urobi\u0165 len hysterick\u00fa a\u00a0labiln\u00fa matku.<\/p>","protected":false},"featured_media":149849,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-149792","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/149792","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/149849"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=149792"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=149792"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=149792"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=149792"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}