Mlad\u00e1 sle\u010dna je odmali\u010dka viac v\u00a0nemocniciach ako doma. A\u00a0hoci si s\u00a0mamou pl\u00e1nuj\u00fa, \u017ee raz naozaj p\u00f4jdu k\u00a0moru, tento rok to op\u00e4\u0165 nevy\u0161lo. Letn\u00e9 pr\u00e1zdniny m\u00e1 Amy in\u00e9… V\u00a0j\u00fani 2024 absolvovala v\u00a0Brne n\u00e1ro\u010dn\u00fa \u2013 7 hodinov\u00fa oper\u00e1ciu skoli\u00f3zy chrbtice. Rekonvalescencia je n\u00e1ro\u010dn\u00e1 najm\u00e4 na psychiku. Amy mus\u00ed 4 mesiace vydr\u017ea\u0165 len v\u00a02 poloh\u00e1ch \u2013 m\u00f4\u017ee len le\u017ea\u0165 alebo st\u00e1\u0165 za pomoci\u00a0 chod\u00edtka. Chrbtica sa nesmie oh\u00fdba\u0165. Amy je ale hrdinka, \u00fasmevy rozd\u00e1va na v\u0161etky strany, povzbudzuje svoju mamku a\u00a0odrat\u00fava dni, kedy sa u\u017e kone\u010dne sama posad\u00ed a\u00a0ver\u00ed, \u017ee urob\u00ed aj prv\u00e9 kroky. \u201eUr\u010dite chcem chodi\u0165 bez chod\u00edtka, d\u00e1m to,\u201c povie a\u00a0mrkne o\u010dkom na mamu. Potrebuje intenz\u00edvne a\u00a0odborn\u00e9 rehabilit\u00e1cie. Obzvl\u00e1\u0161\u0165 teraz, po oper\u00e1cii chrbtice. Mus\u00ed by\u0165 pod odborn\u00fdm doh\u013eadom, preto\u017ee ka\u017ed\u00fd zl\u00fd pohyb m\u00f4\u017ee ma\u0165 fat\u00e1lne n\u00e1sledky. V\u00a0Adeli si svoj prv\u00fd pobyt nevie vynachv\u00e1li\u0165, p\u00e1\u010di sa jej \u00faplne v\u0161etko. Terapie, priestory, ochota person\u00e1lu, ale aj vonkaj\u0161ie prostredie. \u201eM\u00e1me to 2 v\u00a01 \u2013 kone\u010dne som niekde na pr\u00e1zdnin\u00e1ch, nie som doma ani v\u00a0nemocnici, som proste inde,\u201c naradostene povie diev\u010datko, ku ktor\u00e9mu osud milosrdn\u00fd nebol. Amy s\u00a0mamou v\u0161ak vedia, \u017ee jeden pobyt v\u00a0Adeli nesta\u010d\u00ed. Na jese\u0148 sa potrebuj\u00fa vr\u00e1ti\u0165 op\u00e4\u0165, preto\u017ee \u0161anca na samostatn\u00fa ch\u00f4dzu tu je a\u00a0oni si ju nechc\u00fa da\u0165 vzia\u0165. Potrebuj\u00fa v\u0161ak pomoc od dobr\u00fdch \u013eud\u00ed, z\u00a0opatrovate\u013esk\u00e9ho pr\u00edspevku nemaj\u00fa \u0161ancu si na\u0161etri\u0165.<\/p>\n
\u201e\u010eakujem vopred ka\u017ed\u00e9mu za ka\u017ed\u00e9 darovan\u00e9 euro, verte mi, \u017ee raz budem pom\u00e1ha\u0165 aj ja. Nielen dobr\u00fdmi skutkami aj pr\u00e1cou. Chcem by\u0165 lek\u00e1rkou, je to to najzmysluplnej\u0161ie povolanie ak\u00e9 len m\u00f4\u017ee by\u0165,\u201c odhodlane vyriekne Amy. Dr\u017e\u00edme Ti palce!<\/p>","protected":false},"excerpt":{"rendered":"
Amy je 13 ro\u010dn\u00e1 sle\u010dna s\u00a0v\u00e1\u017enou diagn\u00f3zou \u2013 tzv. pletencov\u00e1 svalov\u00e1 dystrofia. Ide o\u00a0genetick\u00e9 neuromuskul\u00e1rne ochorenie, ktor\u00e9 postihuje najm\u00e4 svalstvo okolo ramien, bokov a\u00a0panvy. V\u00a0neskor\u0161om obdob\u00ed b\u00fdva postihnut\u00e9 srdce aj p\u013e\u00faca. U\u00a0pacientov, ktor\u00fdm chorobu diagnostikuj\u00fa v\u00a0rannom detstve, je progres r\u00fdchlej\u0161\u00ed. Tak je to, bohu\u017eia\u013e, aj u\u00a0Amy, v\u00a0roku 2015 jej na z\u00e1klade genetick\u00fdch vy\u0161etretn\u00ed lek\u00e1ri stanovili diagn\u00f3zu. Amy potrebuje 24 hodinov\u00fa starostlivos\u0165. Chod\u00ed pomocou chod\u00edtka, na dlh\u0161ie vzdialenosti potrebuje voz\u00edk, len\u017ee aj jej p\u013e\u00faca u\u017e funguj\u00fa len na 25 percent. V\u00a0noci je t\u00edned\u017eerka odk\u00e1zan\u00e1 na d\u00fdchac\u00ed pr\u00edstroj. \u201eAby sa mi dobili baterky,\u201c vtipne poznamen\u00e1 Amy, ktor\u00fa \u017eivot neskuto\u010dne bav\u00ed a\u00a0te\u0161\u00ed sa z\u00a0neho. Amy m\u00e1 toti\u017e aj ob\u0161truk\u010dn\u00e9 sp\u00e1nkov\u00e9 apnoe \u0165a\u017ek\u00e9ho stup\u0148a…<\/p>\n
Amy \u017eije so svojou mamou Katkou, ktor\u00e1 musela pr\u00e1cu kraj\u010d\u00edrky zanecha\u0165 a\u00a0s\u00a0dc\u00e9rou je na opatrovate\u013eskom. Otec Amy ne\u010dakane pred 4 rokmi zomrel, Amy s\u00a0n\u00edm mala kr\u00e1sny, l\u00e1skypln\u00fd vz\u0165ah. St\u00e1le za n\u00edm sm\u00fati, ka\u017ed\u00fd rok mu na De\u0148 otcov p\u00ed\u0161e doj\u00edmav\u00e9 listy.<\/p>","protected":false},"featured_media":149908,"template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":""},"product_brand":[],"product_cat":[108],"product_tag":[],"class_list":["post-149861","product","type-product","status-publish","has-post-thumbnail","product_cat-pomoc-potrebuju","first","instock","sold-individually","shipping-taxable","purchasable","product-type-variable-subscription","has-default-attributes"],"acf":[],"_links":{"self":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product\/149861","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product"}],"about":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/types\/product"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media\/149908"}],"wp:attachment":[{"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/media?parent=149861"}],"wp:term":[{"taxonomy":"product_brand","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_brand?post=149861"},{"taxonomy":"product_cat","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_cat?post=149861"},{"taxonomy":"product_tag","embeddable":true,"href":"https:\/\/nadaciaadeli.sk\/en\/wp-json\/wp\/v2\/product_tag?post=149861"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}