In March 2012, she underwent mandatory vaccination with the hexavalent vaccine and the pneumococcal vaccine. Within two weeks of the vaccination, there was a turning point, and our little girl began to change before our eyes. A smiling baby turned into a rag doll with an expressionless face devoid of emotion. She stopped laughing, babbling, her eye contact gradually weakened, and she would cry or scream for long periods, seemingly without reason. In May 2012, we were hospitalized in the neurology department in Bratislava, as Lilianka's arms and legs started to twitch, and she began to roll her eyes. We spent two months in Bratislava filled with examinations, spinal taps, two long months filled with sadness, fear, and hopelessness.

Our daughter has been diagnosed with severe idiopathic epileptic encephalopathy, meaning strong epileptic seizures that do not respond to any treatment. Despite about 17 different types of antiepileptic drugs and a ketogenic diet, after which she ended up in the ICU, Lilianka has severe seizures of various types that we are unable to control. At 7 years old, she cannot sit, walk, or talk on her own; she wears diapers. Her psychomotor development has frozen at the age she became ill; it is at the level of the first trimester. We are desperate because we have exhausted all available treatment methods.

Lilianka needs constant care 24/7; she is completely dependent on our care. We dream of the day when she will be able to sit on her own. Her being able to stand on her own feet would be considered a miracle. We recently completed a rehabilitation stay at the ADELI Centre in Piešťany, which Lilianka managed surprisingly well. However, given her condition, she would need this stay repeated. We therefore dare to ask all people with big hearts for support in financing another stay. I do not dare to hope for a miracle that would bring back the perceptive, cheerful baby she once was, but perhaps, thanks to your help, she will one day be able to take her first steps.

THANK YOU!